Who wants to hear about my bladder? I do! I do!

I feel like I have not complained about my health on here quite enough lately... so here goes!
I have been having a lot of pelvic pain and pressure for a long time now. Basically I walk around most of my life feeling like I have a UTI. If I am ever grumpy, you may now know why.
Since last May, I have been treated for many bladder infections, sometimes having to take one course of antibiotics after another. Trying to figure out my pain and symptoms, they screened me for ovarian cysts (which I have had in the past, and some of my pain feels exactly like that.)
I also had a full CT scan done, where I had to fast and then drink huge bottles of that white gunk. I have been tested for every STD (umm, nooooo still NEGATIVE on that!) by both my family doc and my ob/gyn. Even twice in the span of a month... um, I really still think that I don't have it... could you not just ask the other office to fax the results over???
I have been checked out for endometriosis and all kind of bowel and intestinal problems. (My insurance company must curse the day Dave ever married me! I am so blessed to have had insurance these last few years with all of the stuff I have been through.... ) My family doctor was trying to decide to refer me to a gastro doc, a urologist, or to an ob/gyn. I decided to go to the ob/gyn, since there was some question that maybe my IUD was causing my symptoms. But my ob/gyn said it was perfectly in place, everything looks great, and I have had it since Anna was 8 weeks old, and it really has not given me problems. He tested me for all sorts of infections, sent my urine (which had white blood cells in it and blood as ALWAYS) to be cultured for bacteria, that came back clean, so he decided from his exam to send me to a urologist. Both him and my family doc thought I might have intersistial cystitis. So then I wait weeks to get into the urologist, he rules out any hernias and gets yet another urine sample, sends it away to be cultured, etc. Then he schedules me for a series of tests, one of which is supposed to be quite painful, and the other one is really not that big of a deal (yet it involved putting catheters in my urethra and up my rear, and then filling my bladder up to full capacity while having electrodes taped various places, and it was really, not, not fun). Luckily, my insurance company refused to pay for the super bad test until I had the other one first. Thank GOD, because I don't know how much worse it could get than the test they did do! Finally, on Thursday, I got an answer.
I have an inflammatory bladder condition that they "don't fully understand yet." I really love it when doctors admit they don't understand something. It makes me feel really, really calm and reassured. Right. So now I am on some old person medicine for people with incontinence issues, that sometimes works for people with my problem, and sometimes does nothing at all.... But the excellent news is that I don't have intersistial cystisis, which is a very difficult condition to treat and sometimes results in people having their bladder removed. Don't want that, no thank you. I guess a lot of people with fibromyalgia suffer from this condition I have, also for reasons unknown. He explained that I have the white blood cells in my urine all the time because that is how the body reacts to inflammation, like it would if I had an infection. Since my bladder is inflammed, I test positive for UTIs and have symptoms of UTIs. Apparently, I have taken a lot of antibiotics that I did not need in the past year, and really, in the past several years... I wonder how often I did not have a legitimate UTI. I have been having some issues like this for a long time now, it has just gotten increasingly unbearable in the past year. And I have been reading that a lot of people who have fibromyalgia, migraines, and allergies, often also have this bladder thing. So I have all of those, and also now this. But so far, all of the diagnosis I have gotten have been better than the worst it could be, like last January when my dr. was concerned I had MS, but I have fibro instead, not I have this bladder thing, but not the really bad bladder thing. Guess I am pretty fortunate! But still, when you add up the sum of everything, I walk through every day feeling very miserable. Could be worse, could be worse, could be worse. Could be better.